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Sobre o workshop
Anticipate Gaucher Workshop em sua segunda edição discutirá, em evento multidisciplinar voltado para médicos, residentes e demais profissionais de saúde, a Doença de Gaucher. Percorreremos as nuances em seu diagnóstico, desde a variabilidade genética às informações que no raciocínio clínico proporcionem o diagnóstico precoce e o tratamento adequado...um grande momento de troca de experiências.
A Doença de Gaucher é uma doença genética rara, resultante da deficiência da enzima beta-glicocerebrosidase. Sem esta enzima, o glicocerebrosídeo vai se acumulando no organismo, em diferentes órgãos e resultando em uma variedade de sintomas com prejuízos à saúde e qualidade de vida.
O diagnóstico da Doença de Gaucher, assim como para outras doenças raras, pode levar anos, envolvendo médicos de diferentes especialidades e exames. O diagnóstico precoce e o acompanhamento multiprofissional da Doença de Gaucher é essencial para o alívio de sintomas, redução de sequelas e retardar a progressão da doença. Portanto, venha conosco antecipar o diagnóstico de Doença de Gaucher em seu raciocínio clínico.
Inscreva-se e vamos juntos “antecipar Gaucher”.
A Doença de Gaucher é uma doença genética rara, resultante da deficiência da enzima beta-glicocerebrosidase. Sem esta enzima, o glicocerebrosídeo vai se acumulando no organismo, em diferentes órgãos e resultando em uma variedade de sintomas com prejuízos à saúde e qualidade de vida.
O diagnóstico da Doença de Gaucher, assim como para outras doenças raras, pode levar anos, envolvendo médicos de diferentes especialidades e exames. O diagnóstico precoce e o acompanhamento multiprofissional da Doença de Gaucher é essencial para o alívio de sintomas, redução de sequelas e retardar a progressão da doença. Portanto, venha conosco antecipar o diagnóstico de Doença de Gaucher em seu raciocínio clínico.
Inscreva-se e vamos juntos “antecipar Gaucher”.
🟠 Evento gratuito e com certificado somente para profissionais de saúde
Palestrantes
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Dra. Einat Brill Almon
The former Chief Development Officer and SVP of Protalix Biotherapeutics Saiba mais
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Marcelo Soares Kerstenetzky
Coordenador Médico do RARUS - Serviço de Referências em Doenças Raras- Hospital Maria Lucinda - Recife-PE Saiba mais
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Dra Teresa Cristina Bortolheiro
Hematologista e patologista clínica, Faculdade de Ciências Médicas da Santa Casa de São Paulo Saiba mais
Está chegando o grande dia!
Programação
(sujeita a alterações)
28/09/24
Fuso horário do evento (faça login para alterar): Brasilia (GMT-03:00)
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Gratuidade encerrada
09:35
09:35
A heterogeneidade clínica em Doença de Gaucher e o diagnóstico precoce - Português
Marcelo Soares Kerstenetzky
Acessar
Gratuidade encerrada
09:35
09:35
Clinical heterogeneity in GD and the early diagnosis. - English
Marcelo Soares Kerstenetzky
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fldb7swti1bjje316ur4je0ol9xk6%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522Captura%2520de%2520Tela%25202024-08-22%2520a%25253Fs%252015.51.32%2520%2525281%252529.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527Captura%252520de%252520Tela%2525202024-08-22%252520a%2525CC%252580s%25252015.51.32%252520%2525281%252529.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251207%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251207T125939Z%26X-Amz-Expires%3D600%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Db049aa625a7e7ebfd3915b67ec360c55de0b738f92b27947eb6972db834f3a1f)
Gratuidade encerrada
10:05
10:05
Associação de Gaucher e Neoplasias - Português
Dra Teresa Cristina Bortolheiro
Acessar
Gratuidade encerrada
10:05
10:05
Association of Gaucher and neoplasms - English
Dra Teresa Cristina Bortolheiro
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fckij0w958jba20o45zsvngdwtedu%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522image001.jpg%2522%253B%2520filename%252A%253DUTF-8%2527%2527image001.jpg%26response-content-type%3Dimage%252Fjpeg%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251207%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251207T125939Z%26X-Amz-Expires%3D600%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D714372f2374793ca39105bb30ee6fab6c3edf519e882d9aa639c6ed582ac3684)
Gratuidade encerrada
10:45
10:45
Proteínas terapêuticas baseadas em células vegetais: da ciência à clínica - Português
Dra. Einat Brill Almon
Acessar
Gratuidade encerrada
10:45
10:45
Plant cell –based therapeutic proteins: From science to clinic - English
Dra. Einat Brill Almon
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2F84ws2pt54twdfeezundm8igwygos%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522IMG-20220321-WA0019%2525281%252529.jpg%2522%253B%2520filename%252A%253DUTF-8%2527%2527IMG-20220321-WA0019%2525281%252529.jpg%26response-content-type%3Dimage%252Fjpeg%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251207%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251207T125939Z%26X-Amz-Expires%3D600%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Dca797a941bdd414ff32d8fc6f80566825febc1bbfbd53fe714f9decf98244ccc)
Gratuidade encerrada
13:00
13:00
Experiência Brasileira com alfa Taliglucerase na Doença de Gaucher: resultados descritivos e experiência no HEMORIO - Português
Renata de Souza Cravo
Acessar
Gratuidade encerrada
13:00
13:00
Brazilian experience with Taliglucerase alfa for Gaucher’s disease: descriptive results and Experience at HEMORIO - English
Renata de Souza Cravo
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fvz1moubjkqncwsocn5kemgah5wz7%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522Captura%2520de%2520Tela%25202024-08-22%2520a%25253Fs%252015.55.33%2520%2525281%252529.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527Captura%252520de%252520Tela%2525202024-08-22%252520a%2525CC%252580s%25252015.55.33%252520%2525281%252529.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251207%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251207T125939Z%26X-Amz-Expires%3D600%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D295764ba8a2160cd250d05949fd749dff06ce3e2e9407ea25fe8775e58ead44e)
Gratuidade encerrada
13:30
13:30
Experiência no Mundo Real: Dados de um estudo de coorte - Português
Dr David Cavalcanti Ferreira
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Gratuidade encerrada
13:30
13:30
Real World Experiences: Brazilian data in a global cohort study - English
Dr David Cavalcanti Ferreira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Frkajy8w54bazc4j60o3kn0n4klob%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522Captura%2520de%2520Tela%25202024-09-11%2520a%25253Fs%252008.33.03%2520%2525281%252529.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527Captura%252520de%252520Tela%2525202024-09-11%252520a%2525CC%252580s%25252008.33.03%252520%2525281%252529.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251207%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251207T125940Z%26X-Amz-Expires%3D600%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D087d01040e2cce638e624f6aab7c4d6592da7365bb111be1c2d6438fa13643e2)
Gratuidade encerrada
14:10
14:10
Perdas, Luto e a Resiliência - Português
Dra. Adriana de França Brasil
Acessar
Gratuidade encerrada
14:10
14:10
Losses, Grief and Resilience - Inglês
Dra. Adriana de França Brasil
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Ff1ql3wajot03ukikr412jscfarmv%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522Captura%2520de%2520Tela%25202024-08-12%2520a%25253Fs%252012.21.28.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527Captura%252520de%252520Tela%2525202024-08-12%252520a%2525CC%252580s%25252012.21.28.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251207%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251207T125940Z%26X-Amz-Expires%3D600%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D9b0c6994349a2568c14e295737372eb366a8035692030306b70e2cbb3ed22fc9)
Gratuidade encerrada
14:40
14:40
Programa de atendimento e apoio ao paciente como diferencial no tratamento e Assistência Farmacêutica Especializada - Português
Enf. Fernanda Grasso
Acessar
Gratuidade encerrada
14:40
14:40
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