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11/03
Fórum Conecta Saúde 2026 - ATS e Política Públicas para Doenças Raras e Respiratórias
2026
Sobre o evento o congresso
Três anos de aprendizados e conexões nos trouxeram até aqui!
O Fórum Brasileiro de Avaliação de Tecnologias em Saúde para Doenças Raras agora é Fórum Conecta Saúde – ATS e Políticas Públicas para Doenças Raras e Respiratórias, um espaço ainda mais diverso e potente para ampliarmos o diálogo sobre acesso e avanços em políticas públicas.
Na edição de 2026, o evento será realizado no formato híbrido, no Blue Tree Premium Morumbi (Av. Roque Petroni Júnior, 1000 - Vila Gertrudes, São Paulo - SP) e também online, por meio desse site, com tradução simultânea em inglês, espanhol e Libras.
O Fórum Conecta Saúde 2026 - ATS e Política Públicas para Doenças Raras e Respiratórias é uma realização do Instituto Unidos pela Vida.
O Fórum Brasileiro de Avaliação de Tecnologias em Saúde para Doenças Raras agora é Fórum Conecta Saúde – ATS e Políticas Públicas para Doenças Raras e Respiratórias, um espaço ainda mais diverso e potente para ampliarmos o diálogo sobre acesso e avanços em políticas públicas.
Na edição de 2026, o evento será realizado no formato híbrido, no Blue Tree Premium Morumbi (Av. Roque Petroni Júnior, 1000 - Vila Gertrudes, São Paulo - SP) e também online, por meio desse site, com tradução simultânea em inglês, espanhol e Libras.
O Fórum Conecta Saúde 2026 - ATS e Política Públicas para Doenças Raras e Respiratórias é uma realização do Instituto Unidos pela Vida.
Palestrantes
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Marise Basso Amaral
Pós-Doutora em Bioética, professora da UFF e diretora geral do Instituto Unidos pela Vida Saiba mais
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Verônica Stasiak Bednarczuk de Oliveira
Doutoranda em Ciências Farmacêuticas (ATS), fundadora e diretora executiva do Unidos pela Vida Saiba mais
Não perca!
11/03
Faça agora mesmo a sua inscrição gratuita!
Faça agora mesmo a sua inscrição gratuita!
Assista em Português!
(sujeita a alterações)
11/03/26
Fuso horário do evento (faça login para alterar): Brasilia (GMT-03:00)
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Acesso gratuito
09:30
09:30
Painel 01 | Políticas públicas em doenças raras e respiratórias: onde estamos?
Verônica Stasiak Bednarczuk de Oliveira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fdq2dkm8a7m85d7ngo6hj69cnroo9%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522icone%2520painel.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527%2525C3%2525ADcone%252520painel.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251215%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251215T132127Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D90d35ad8ea490dfcc802ce767517355ed1037f4bc3006d533da8eaddb7e331a0)
Acesso gratuito
11:00
11:00
Painel 02 | Avaliação de Tecnologias em Saúde para doenças raras: caminhos para o aprimoramento
Verônica Stasiak Bednarczuk de Oliveira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fixxxha1gzqd82gbqzrab6q8lcaid%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522icone%2520painel.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527%2525C3%2525ADcone%252520painel.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251215%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251215T132127Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D92cf23adbf2a3701aa0b797ce2e8c77c3478f0acbe91893f2a0f9bc1f4fe9477)
Acesso gratuito
14:00
14:00
Painel 03 | Evidências e Participação Social: legitimidade e qualidade para apoiar decisões em saúde
Verônica Stasiak Bednarczuk de Oliveira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Ft45ngfw8iy69pzdn1675iae4s19c%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522icone%2520painel.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527%2525C3%2525ADcone%252520painel.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251215%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251215T132127Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Da44d08a0d8218d72c0ebf863d888e4ac975bf9a9d1a5f54ad41dec29a2543c0f)
Acesso gratuito
15:45
15:45
Painel 04 | Doenças Raras e Respiratórias: presente e futuro do acesso em saúde
Verônica Stasiak Bednarczuk de Oliveira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2F0p2mamleaqiu3ghlcosarvemreij%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522icone%2520palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527%2525C3%2525ADcone%252520palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251215%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251215T132128Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Df50ce7de3e73ca587476face78b7b24684eb6fa92e5ae5b8bfce277606cf0cb6)
Acesso gratuito
17:00
17:00
Encerramento
Marise Basso Amaral, Verônica Stasiak Bednarczuk de Oliveira
AcessarWatch it in English!
(sujeita a alterações)
11/03/26
Fuso horário do evento (faça login para alterar): Brasilia (GMT-03:00)
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Acesso gratuito
09:30
09:30
Panel 01 | Public policies for rare and respiratory diseases: where do we stand?
Verônica Stasiak Bednarczuk de Oliveira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fa35nhrs17vpkz44yikzp0uc7sb5t%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522icone%2520painel.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527%2525C3%2525ADcone%252520painel.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251215%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251215T132128Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Dc9b9581b3310a072b60866b405628f9d3c26383b4425ab937ec8c7de999310e2)
Acesso gratuito
11:00
11:00
Panel 02 | Health Technology Assessment (HTA) for rare diseases: paths for improvement
Verônica Stasiak Bednarczuk de Oliveira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Ft5ezrn730z0oofzps5boynhz9z81%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522icone%2520painel.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527%2525C3%2525ADcone%252520painel.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251215%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251215T132128Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Dba13d1b66d4735783f8ae01f72dd096586eab0fd1e0954ce09913c5fd4f266d7)
Acesso gratuito
14:00
14:00
Panel 03 | Evidence and Social Participation: legitimacy and quality to support health decisions
Verônica Stasiak Bednarczuk de Oliveira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fhxupj4no1el6gb3xvg54bkgd5dou%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522icone%2520painel.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527%2525C3%2525ADcone%252520painel.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251215%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251215T132128Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D8b8bd9cbbdb272af73e7e8a6ba32c13fa30d55b32e8112228d32b9736b3299e0)
Acesso gratuito
15:45
15:45
Panel 04 | Rare and Respiratory Diseases: present and future of health access
Verônica Stasiak Bednarczuk de Oliveira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fpcrtwtnb3mb6i2wqb4ka5hrnln65%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522icone%2520palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527%2525C3%2525ADcone%252520palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251215%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251215T132128Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Dd433a216b7a08649df420ef5e7a31597b93d08f8fbe27ed575f21fe0b319c819)
Acesso gratuito
17:00
17:00
Closing Remarks
Marise Basso Amaral, Verônica Stasiak Bednarczuk de Oliveira
AcessarMira en Español!
(sujeita a alterações)
11/03/26
Fuso horário do evento (faça login para alterar): Brasilia (GMT-03:00)
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Acesso gratuito
09:30
09:30
Panel 01 | Políticas públicas en enfermedades raras y respiratorias: ¿dónde estamos?
Verônica Stasiak Bednarczuk de Oliveira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fx9ukhmgnjl8l8408kbm4bizg0p5b%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522icone%2520painel.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527%2525C3%2525ADcone%252520painel.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251215%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251215T132129Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3De9262082c2f47f4e1d08f3e90f4bce8610c2eb1bbf399df9cbe9eb248e2ca13d)
Acesso gratuito
11:00
11:00
Panel 02 | Evaluación de Tecnologías Sanitarias (ETS) para enfermedades raras: caminos para la mejora
Verônica Stasiak Bednarczuk de Oliveira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fzz1j0pkdolf0ltsr67phejrz4rwy%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522icone%2520painel.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527%2525C3%2525ADcone%252520painel.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251215%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251215T132129Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D946a7a87dbbb544eab4a1f99326a9691e2c76b1341e4b9039b933813db54335c)
Acesso gratuito
14:00
14:00
Panel 03 | Evidencia y Participación Social: legitimidad y calidad para apoyar decisiones en salud
Verônica Stasiak Bednarczuk de Oliveira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Ftqt6fibbj5wgvtexd4rw46mu34b3%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522icone%2520painel.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527%2525C3%2525ADcone%252520painel.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251215%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251215T132129Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D57d1de5b9e798e18f7495853c5ffe3834b00931472ca476b9497a87ae75397e2)
Acesso gratuito
15:45
15:45
Panel 04 | Enfermedades Raras y Respiratorias: presente y futuro del acceso en salud
Verônica Stasiak Bednarczuk de Oliveira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2F2040b6dp19bh82c55k08pnyvt809%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522icone%2520palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527%2525C3%2525ADcone%252520palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251215%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251215T132129Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D663be6d528e1276494aa6c2ab695cbac57256cf37ad4ed29f8e9f77c60003b50)
Acesso gratuito
17:00
17:00
Cierre / Clausura
Marise Basso Amaral, Verônica Stasiak Bednarczuk de Oliveira
AcessarPatrocinadores
Master
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