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Sobre o evento
O objetivo é promover a divulgação e reflexão de iniciativas de sucesso em saúde, focadas na população com patologias raras.
A identificação de boas práticas e a discussão de suas possíveis replicabilidades são temas da maior importância na busca da aceleração de diagnósticos, construção de planos de manejo e alternativas de acesso a tratamento.
Horário: das 09:00 às 12:30
Horário: das 09:00 às 12:30
Formato: Presencial
Local: Câmara Municipal de São Paulo
Endereço: Viaduto Jacareí, 100 - Bela Vista, São Paulo
Sala: Salão Nobre
Está chegando o grande dia!
Programação
(sujeita a alterações)
10/03/25
Fuso horário do evento (faça login para alterar): Brasilia (GMT-03:00)
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Acesso gratuito
09:30
09:30
PRESENCIAL| Abertura Oficial
Amanda Vettorazzo, Andréa Werner, Cris Monteiro, João Cury, Maria Lucia Amary, Rosangela Moro, Silvia Grecco e Tomé Abduch
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Acesso gratuito
09:45
09:45
PRESENCIAL | Painel 1 – Ações do Executivo (Ações desenvolvidas pelo Município e Estado de São Paulo & Parcerias)
Ariadne Guimarães, Dr. Carlos Eugênio, Dra. Carmela Grindler, Maria Alice Susemihl e Silvia Grecco
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Acesso gratuito
10:40
10:40
PRESENCIAL | Painel 2 – Ações do Legislativo (Leis propostas e aprovadas no Estado de São Paulo (Discussão de Boas Práticas)
Antoine Daher, Amanda Vettorazzo, Andréa Werner, Cris Monteiro, João Cury, Maria Lucia Amary, Rosangela Moro, Tomé Abduch
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Acesso gratuito
11:35
11:35
PRESENCIAL | Painel 3 – Ações do Judiciário (Conquistas e Desafios Locais na Defesa dos Direitos da Pessoa com Doença Rara (cases))
Dra. Andreia Bessa, Dr. Clênio Jair Schulze, Dra. Juliana Peneda Hasse e Dr. Ramiro Nóbrega Sant'ana
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Realização
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Patrocinadores
OURO
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BRONZE
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Apoiadores
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