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De 21/11 a 22/11
3º Simpósio Brasileiro Interdisciplinar sobre Fibrose Cística
Um evento único para profissionais da saúde, pesquisadores, pessoas com fibrose cística, familiares, representantes de associações de assistência, estudantes da área de saúde e demais interessados no tema.
Sobre o evento
O Simpósio Brasileiro Interdisciplinar sobre Fibrose Cística tem como objetivo ser um espaço horizontal de debates entre médicos, pesquisadores, representantes de associações de apoio, familiares e pessoas com fibrose cística, estudantes da área de saúde e interessados no tema. Sem limitação geográfica, por ser online, o evento tem como essência a inclusão: somando a competência técnica dos profissionais de saúde e estudiosos do tema com a experiência do familiar e da pessoa diagnosticada.
Em sua terceira edição, o evento abordará a importância da alfabetização sanitária no processo de empoderamento da pessoa com fibrose cística e protagonismo de sua jornada, a navegação de pacientes nos sistemas de saúde, o papel da população e sociedade médica nos espaços de participação social e advocacy, além das inovações científicas na fibrose cística.
O 3º Simpósio Brasileiro Interdisciplinar sobre Fibrose Cística é uma realização do Unidos pela Vida - Instituto Brasileiro de Atenção à Fibrose Cística, com patrocínio da Jotabasso Sementes e Vertex.
Palestrantes
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Cristiano Machado Silveira
Diretor de Políticas Públicas e Advocacy do Instituto Unidos pela Vida Saiba mais
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Dr. Danylo César Correia Palmeira
MD, MSc. Presidente Sociedade Pernambucana de Infectologia 22/23 Hospital das Clínicas/UFPE Real Hospital Português Saiba mais
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Dra. Emilia Arrighi
Diretora geral da Universidade do Paciente e da Família www.universidaddepacientes.org Saiba mais
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Não perca!
De 21/11 a 22/11
Faça parte desse evento único para a comunidade da fibrose cística no Brasil!
Faça parte desse evento único para a comunidade da fibrose cística no Brasil!
Programação
(sujeita a alterações)
21/11/22
22/11/22
Fuso horário do evento (faça login para alterar): Brasilia (GMT-03:00)
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Gratuidade encerrada
14:35
14:35
Mesa 01: A jornada da pessoa com fibrose cística no Brasil
Dra. Emilia Arrighi, Dra. Marise Basso Amaral, Dra. Sandra Gioia, Leonardo Rodolfo Napeloso
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Gratuidade encerrada
14:40
14:40
Saber o que se tem pode mudar tudo: A importância da educação em saúde no desenvolvimento do protagonismo da pessoa com FIbrose Cística
Dra. Emilia Arrighi
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2F0u9gqqk83gbebiqmkh6wod4c1mwf%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251218%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251218T042937Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D4d407b8d78529e454b5df123bf3976110ecfd31a59627ed3d7f44c08e33f7c69)
Gratuidade encerrada
14:55
14:55
A importância da navegação de pacientes nos sistemas de saúde
Dra. Sandra Gioia
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fx61sprkvrecyprtn6iqj81leerfh%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251218%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251218T042937Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D27239441cbf4b9718269b46d74dfe2ae221b1d8ac234dc68644d885008610436)
Gratuidade encerrada
15:10
15:10
Quando sei o que tenho, lido melhor com a realidade: Relato de uma pessoa com fibrose cística
Leonardo Rodolfo Napeloso
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Flktxzl0mftn6jxrp9xmz0f7huwhk%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestras.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestras.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251218%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251218T042937Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Da5f991e1a4c7fb77dfc6744d35da202cc2347698aa401644f759feb489c15862)
Gratuidade encerrada
16:10
16:10
Mesa 02: Aspectos do processo de Avaliação de Tecnologias em Saúde em Fibrose Cística
Verônica Stasiak Bednarczuk de Oliveira, Laura Murta Amaral, Manoela Onofrio
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fh1i3t44m9x1km2hzpjgj1w8ju5ty%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251218%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251218T042937Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D6f7acaa285e6e5e3a0872621021eca3240453c8e33118d3d818f925616c0b43d)
Gratuidade encerrada
16:15
16:15
A importância das contribuições científicas e de experiências nas Consultas Públicas: Resultados e reflexões
Verônica Stasiak Bednarczuk de Oliveira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fn8gqljp7ptleqkbzcblb3g8cr1w9%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251218%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251218T042937Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Ddff00a20b893a8a5763e0377624d60911fd228f72f1f8cc11671e4a881261820)
Gratuidade encerrada
16:30
16:30
Prescrever medicações não incorporadas ou não? Causas e consequências
Laura Murta Amaral
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fg86h845mp9jpmxnhsbulipxu6jet%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251218%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251218T042937Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3De6cbc89b194c78970d6e8b9eaa8e68c0f9b8fbd5784f7f3a6c59b7df22d291f8)
Gratuidade encerrada
16:45
16:45
Como a classe médica contribui com o advocacy em saúde?
Manoela Onofrio
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Flexpkdk411dohh9k1tt8nmbu92cq%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522abertura.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527abertura.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251218%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251218T042937Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D73a405417942e805df697813cd763fcaf87a1fc1bdb1d183a0bbf3ac65068a95)
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Gratuidade encerrada
14:35
14:35
Mesa 03: Novidades no cenário da fibrose cística
Dra. Mariana Camargo, Renato Fraietta, Dr. Fábio André Franke, Dr. Danylo César Correia Palmeira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fwmx8of4oaokbl8kggtylb64c6h4v%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251218%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251218T042938Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D343feab38d8eb58f065dd68010632226e5f16e64171febb92cd91996b260ba3a)
Gratuidade encerrada
14:40
14:40
Fertilidade: conversando sobre reprodução de homens e mulheres com fibrose cística
Renato Fraietta
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fkcmp4zky6z2ci7pqwm6pszk5vgxl%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251218%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251218T042938Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3De78707c79e0d28e18778f3f7beb0b3354b4ce2af1df394f34d296d278da062a2)
Gratuidade encerrada
14:55
14:55
Pesquisa Clínica: o que está faltando para trazermos para o Brasil?
Dr. Fábio André Franke
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fahhmeaswxkaqkq6kkrpvwxbm9ly8%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251218%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251218T042938Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Db922a17e8520550721a585ff402ac9ade4821942ad82f19ee128564c089ab049)
Gratuidade encerrada
15:10
15:10
Atualizações sobre Resistência antimicrobiana na Fibrose Cística
Dr. Danylo César Correia Palmeira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fgxxsawohib5xtacbtgmm2lgyjf2j%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestras.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestras.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251218%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251218T042938Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D68ef901329b4136896b865d7b4783518714380bedf19fbf5e4e72706b1f2be07)
Gratuidade encerrada
16:10
16:10
Mesa 04: Novidades no tratamento da fibrose cística - o futuro
Cristiano Machado Silveira, Rodrigo Abensur Athanazio, Dr. Leonardo Araujo Pinto
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fmi6h1sztb9ffyzyj7i6iw5spdg6h%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251218%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251218T042938Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D07e302c95aa7f4e6872a29af77ef36dadf13c1bfd5a84baed9f6f200f38e07da)
Gratuidade encerrada
16:15
16:15
Genes não atendidos pelo moduladores: o presente e futuro
Rodrigo Abensur Athanazio
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2F5hmyq2ylj1jvaaf9t0w43l5xxskd%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251218%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251218T042938Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Df38e451b2cd75d3cb682a3bd407c7d8005f89008370687f1298144fedc9a0de3)
Gratuidade encerrada
16:30
16:30
Relatos de Experiência Brasileiros sobre o uso das novas tecnologias
Dr. Leonardo Araujo Pinto
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Gratuidade encerrada
16:45
16:45
Horizonte Tecnológico: Quais as novidades para o tratamento da fibrose cística?
Cristiano Machado Silveira
AcessarPatrocinadores
Master
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