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De 21/11 a 22/11
3º Simpósio Brasileiro Interdisciplinar sobre Fibrose Cística
Um evento único para profissionais da saúde, pesquisadores, pessoas com fibrose cística, familiares, representantes de associações de assistência, estudantes da área de saúde e demais interessados no tema.
Sobre o evento
O Simpósio Brasileiro Interdisciplinar sobre Fibrose Cística tem como objetivo ser um espaço horizontal de debates entre médicos, pesquisadores, representantes de associações de apoio, familiares e pessoas com fibrose cística, estudantes da área de saúde e interessados no tema. Sem limitação geográfica, por ser online, o evento tem como essência a inclusão: somando a competência técnica dos profissionais de saúde e estudiosos do tema com a experiência do familiar e da pessoa diagnosticada.
Em sua terceira edição, o evento abordará a importância da alfabetização sanitária no processo de empoderamento da pessoa com fibrose cística e protagonismo de sua jornada, a navegação de pacientes nos sistemas de saúde, o papel da população e sociedade médica nos espaços de participação social e advocacy, além das inovações científicas na fibrose cística.
O 3º Simpósio Brasileiro Interdisciplinar sobre Fibrose Cística é uma realização do Unidos pela Vida - Instituto Brasileiro de Atenção à Fibrose Cística, com patrocínio da Jotabasso Sementes e Vertex.
Palestrantes
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Cristiano Machado Silveira
Diretor de Políticas Públicas e Advocacy do Instituto Unidos pela Vida Saiba mais
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Dr. Danylo César Correia Palmeira
MD, MSc. Presidente Sociedade Pernambucana de Infectologia 22/23 Hospital das Clínicas/UFPE Real Hospital Português Saiba mais
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Dra. Emilia Arrighi
Diretora geral da Universidade do Paciente e da Família www.universidaddepacientes.org Saiba mais
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Não perca!
De 21/11 a 22/11
Faça parte desse evento único para a comunidade da fibrose cística no Brasil!
Faça parte desse evento único para a comunidade da fibrose cística no Brasil!
Programação
(sujeita a alterações)
21/11/22
22/11/22
Fuso horário do evento (faça login para alterar): Brasilia (GMT-03:00)
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Gratuidade encerrada
14:35
14:35
Mesa 01: A jornada da pessoa com fibrose cística no Brasil
Dra. Emilia Arrighi, Dra. Marise Basso Amaral, Dra. Sandra Gioia, Leonardo Rodolfo Napeloso
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Gratuidade encerrada
14:40
14:40
Saber o que se tem pode mudar tudo: A importância da educação em saúde no desenvolvimento do protagonismo da pessoa com FIbrose Cística
Dra. Emilia Arrighi
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2F0u9gqqk83gbebiqmkh6wod4c1mwf%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20260127%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20260127T015741Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Dae3b4731c6a903eb54756a2d87039399635f29f36749d8b3875235d02bb5a1ff)
Gratuidade encerrada
14:55
14:55
A importância da navegação de pacientes nos sistemas de saúde
Dra. Sandra Gioia
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fx61sprkvrecyprtn6iqj81leerfh%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20260127%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20260127T015741Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D64760a9ab34a7c2269f32681c1d28fe9b6740ee260fc4e69b4862db9f7a98143)
Gratuidade encerrada
15:10
15:10
Quando sei o que tenho, lido melhor com a realidade: Relato de uma pessoa com fibrose cística
Leonardo Rodolfo Napeloso
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Flktxzl0mftn6jxrp9xmz0f7huwhk%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestras.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestras.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20260127%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20260127T015741Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D9fcdd008c40467bf4ea483c6e561534103ba6a9ffaf6d8e1fc1ee5d94827ce8d)
Gratuidade encerrada
16:10
16:10
Mesa 02: Aspectos do processo de Avaliação de Tecnologias em Saúde em Fibrose Cística
Verônica Stasiak Bednarczuk de Oliveira, Laura Murta Amaral, Manoela Onofrio
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fh1i3t44m9x1km2hzpjgj1w8ju5ty%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20260127%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20260127T015741Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Dc9e9e08eff9507b88a75ba5380d21f23efca87f9d02d1259d8760d8f7fa458be)
Gratuidade encerrada
16:15
16:15
A importância das contribuições científicas e de experiências nas Consultas Públicas: Resultados e reflexões
Verônica Stasiak Bednarczuk de Oliveira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fn8gqljp7ptleqkbzcblb3g8cr1w9%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20260127%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20260127T015742Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D8e9e0c37a8a402659c85bfb1fd810125575619efea061b66583c9138c1b441f6)
Gratuidade encerrada
16:30
16:30
Prescrever medicações não incorporadas ou não? Causas e consequências
Laura Murta Amaral
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fg86h845mp9jpmxnhsbulipxu6jet%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20260127%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20260127T015742Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Da7cea3458ccfaed416d4935059991af85764b1a096cd09ae3811a54e33d9347a)
Gratuidade encerrada
16:45
16:45
Como a classe médica contribui com o advocacy em saúde?
Manoela Onofrio
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Flexpkdk411dohh9k1tt8nmbu92cq%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522abertura.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527abertura.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20260127%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20260127T015742Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D046c61123b9ae283edca33ba4ff928ef5eb87cffdb20f784e518902d564e4786)
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Gratuidade encerrada
14:35
14:35
Mesa 03: Novidades no cenário da fibrose cística
Dra. Mariana Camargo, Renato Fraietta, Dr. Fábio André Franke, Dr. Danylo César Correia Palmeira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fwmx8of4oaokbl8kggtylb64c6h4v%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20260127%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20260127T015742Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D69c3ad4d030d3d393984da07079a019bb307c9f4eb543ca9e8eab6b44e10276b)
Gratuidade encerrada
14:40
14:40
Fertilidade: conversando sobre reprodução de homens e mulheres com fibrose cística
Renato Fraietta
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fkcmp4zky6z2ci7pqwm6pszk5vgxl%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20260127%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20260127T015742Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Deb31cbea10c05ea99776a1337c04a99f365f03f0ee7b152cced4879b8ff08648)
Gratuidade encerrada
14:55
14:55
Pesquisa Clínica: o que está faltando para trazermos para o Brasil?
Dr. Fábio André Franke
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fahhmeaswxkaqkq6kkrpvwxbm9ly8%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20260127%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20260127T015742Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Db092456daa69815414b02373f36ecbe23bb5cafbb196aa1800cb201c20648c03)
Gratuidade encerrada
15:10
15:10
Atualizações sobre Resistência antimicrobiana na Fibrose Cística
Dr. Danylo César Correia Palmeira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fgxxsawohib5xtacbtgmm2lgyjf2j%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestras.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestras.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20260127%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20260127T015743Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Db9e5755b9674c5bcb36a52c54c3fe5e68f864fbfa81d948f058c6de7f29c5042)
Gratuidade encerrada
16:10
16:10
Mesa 04: Novidades no tratamento da fibrose cística - o futuro
Cristiano Machado Silveira, Rodrigo Abensur Athanazio, Dr. Leonardo Araujo Pinto
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fmi6h1sztb9ffyzyj7i6iw5spdg6h%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20260127%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20260127T015743Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Dc4d980d3e790c8400f755230838b51d6320e3ebe911536f6f63513ecdba480f9)
Gratuidade encerrada
16:15
16:15
Genes não atendidos pelo moduladores: o presente e futuro
Rodrigo Abensur Athanazio
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2F5hmyq2ylj1jvaaf9t0w43l5xxskd%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20260127%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20260127T015743Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D9a5f798adcd1ce8e1eb5c328ee56bfd6f46a8fc4197d8756501f4faa6beba371)
Gratuidade encerrada
16:30
16:30
Relatos de Experiência Brasileiros sobre o uso das novas tecnologias
Dr. Leonardo Araujo Pinto
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Gratuidade encerrada
16:45
16:45
Horizonte Tecnológico: Quais as novidades para o tratamento da fibrose cística?
Cristiano Machado Silveira
AcessarPatrocinadores
Master
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