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De 21/11 a 22/11
3º Simpósio Brasileiro Interdisciplinar sobre Fibrose Cística
Um evento único para profissionais da saúde, pesquisadores, pessoas com fibrose cística, familiares, representantes de associações de assistência, estudantes da área de saúde e demais interessados no tema.
Sobre o evento
O Simpósio Brasileiro Interdisciplinar sobre Fibrose Cística tem como objetivo ser um espaço horizontal de debates entre médicos, pesquisadores, representantes de associações de apoio, familiares e pessoas com fibrose cística, estudantes da área de saúde e interessados no tema. Sem limitação geográfica, por ser online, o evento tem como essência a inclusão: somando a competência técnica dos profissionais de saúde e estudiosos do tema com a experiência do familiar e da pessoa diagnosticada.
Em sua terceira edição, o evento abordará a importância da alfabetização sanitária no processo de empoderamento da pessoa com fibrose cística e protagonismo de sua jornada, a navegação de pacientes nos sistemas de saúde, o papel da população e sociedade médica nos espaços de participação social e advocacy, além das inovações científicas na fibrose cística.
O 3º Simpósio Brasileiro Interdisciplinar sobre Fibrose Cística é uma realização do Unidos pela Vida - Instituto Brasileiro de Atenção à Fibrose Cística, com patrocínio da Jotabasso Sementes e Vertex.
Palestrantes
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Cristiano Machado Silveira
Diretor de Políticas Públicas e Advocacy do Instituto Unidos pela Vida Saiba mais
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Dr. Danylo César Correia Palmeira
MD, MSc. Presidente Sociedade Pernambucana de Infectologia 22/23 Hospital das Clínicas/UFPE Real Hospital Português Saiba mais
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Dra. Emilia Arrighi
Diretora geral da Universidade do Paciente e da Família www.universidaddepacientes.org Saiba mais
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Não perca!
De 21/11 a 22/11
Faça parte desse evento único para a comunidade da fibrose cística no Brasil!
Faça parte desse evento único para a comunidade da fibrose cística no Brasil!
Programação
(sujeita a alterações)
21/11/22
22/11/22
Fuso horário do evento (faça login para alterar): Brasilia (GMT-03:00)
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Gratuidade encerrada
14:35
14:35
Mesa 01: A jornada da pessoa com fibrose cística no Brasil
Dra. Emilia Arrighi, Dra. Marise Basso Amaral, Dra. Sandra Gioia, Leonardo Rodolfo Napeloso
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Gratuidade encerrada
14:40
14:40
Saber o que se tem pode mudar tudo: A importância da educação em saúde no desenvolvimento do protagonismo da pessoa com FIbrose Cística
Dra. Emilia Arrighi
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2F0u9gqqk83gbebiqmkh6wod4c1mwf%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074213Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D79b246d776b4a66c7693d421ecfa752c79041cd819268d3234bbcd2fde91a564)
Gratuidade encerrada
14:55
14:55
A importância da navegação de pacientes nos sistemas de saúde
Dra. Sandra Gioia
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fx61sprkvrecyprtn6iqj81leerfh%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074213Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D07f99c9d667528dc3f083eca09430686562d4c175a0dd48458e875ac909b6dc7)
Gratuidade encerrada
15:10
15:10
Quando sei o que tenho, lido melhor com a realidade: Relato de uma pessoa com fibrose cística
Leonardo Rodolfo Napeloso
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Flktxzl0mftn6jxrp9xmz0f7huwhk%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestras.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestras.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074213Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D6e45d6214efb52cd3402b2be406acf14664988d94a3f9dd67579a2dd1f027e9e)
Gratuidade encerrada
16:10
16:10
Mesa 02: Aspectos do processo de Avaliação de Tecnologias em Saúde em Fibrose Cística
Verônica Stasiak Bednarczuk de Oliveira, Laura Murta Amaral, Manoela Onofrio
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fh1i3t44m9x1km2hzpjgj1w8ju5ty%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074213Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D6928637d07d7a01628706cf4666b2c2dfdad3fd44e46a6f29335dc4ecf102621)
Gratuidade encerrada
16:15
16:15
A importância das contribuições científicas e de experiências nas Consultas Públicas: Resultados e reflexões
Verônica Stasiak Bednarczuk de Oliveira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fn8gqljp7ptleqkbzcblb3g8cr1w9%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074213Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D579abc2cd375a59c178e86f85d5afa159e900512718930f1051560d3a10c7749)
Gratuidade encerrada
16:30
16:30
Prescrever medicações não incorporadas ou não? Causas e consequências
Laura Murta Amaral
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fg86h845mp9jpmxnhsbulipxu6jet%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074213Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D8e497ceb0bd372eeada5d9d0029a09bf48e96c75ba38e1e66b9fc06e793ae080)
Gratuidade encerrada
16:45
16:45
Como a classe médica contribui com o advocacy em saúde?
Manoela Onofrio
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Flexpkdk411dohh9k1tt8nmbu92cq%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522abertura.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527abertura.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074214Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Dc8812a699989eb9b568f86ba2aef81149f88cbdd8df460dc234d5ebd1b7abf63)
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Gratuidade encerrada
14:35
14:35
Mesa 03: Novidades no cenário da fibrose cística
Dra. Mariana Camargo, Renato Fraietta, Dr. Fábio André Franke, Dr. Danylo César Correia Palmeira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fwmx8of4oaokbl8kggtylb64c6h4v%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074214Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D850f43219387dbae79dd522446df12ca3b4b527d1099d2db814122c40eb9ad20)
Gratuidade encerrada
14:40
14:40
Fertilidade: conversando sobre reprodução de homens e mulheres com fibrose cística
Renato Fraietta
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fkcmp4zky6z2ci7pqwm6pszk5vgxl%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074214Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Dde8cd776880c808152520714d513bda061c637ab011697d114caf1ad7f5e4592)
Gratuidade encerrada
14:55
14:55
Pesquisa Clínica: o que está faltando para trazermos para o Brasil?
Dr. Fábio André Franke
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fahhmeaswxkaqkq6kkrpvwxbm9ly8%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074214Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Db5c3fd0dbc9f16588733f6f2fae19b5d1223d4339b107d49c1df5a5e25d9f7c9)
Gratuidade encerrada
15:10
15:10
Atualizações sobre Resistência antimicrobiana na Fibrose Cística
Dr. Danylo César Correia Palmeira
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fgxxsawohib5xtacbtgmm2lgyjf2j%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestras.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestras.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074214Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3Dd672b10d30c7fa1682fd542d7491015ed3ed3107cf0cd69c5600c8fdbd30acdb)
Gratuidade encerrada
16:10
16:10
Mesa 04: Novidades no tratamento da fibrose cística - o futuro
Cristiano Machado Silveira, Rodrigo Abensur Athanazio, Dr. Leonardo Araujo Pinto
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2Fmi6h1sztb9ffyzyj7i6iw5spdg6h%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074214Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D14e72b54cd2498196bf4571b44ca035b6f204cfeaeb9fc91827c03bd322a5957)
Gratuidade encerrada
16:15
16:15
Genes não atendidos pelo moduladores: o presente e futuro
Rodrigo Abensur Athanazio
Acessar/https%3A%2F%2Fcongresse-me.s3.amazonaws.com%2F5hmyq2ylj1jvaaf9t0w43l5xxskd%3Fresponse-content-disposition%3Dinline%253B%2520filename%253D%2522palestra.png%2522%253B%2520filename%252A%253DUTF-8%2527%2527palestra.png%26response-content-type%3Dimage%252Fpng%26X-Amz-Algorithm%3DAWS4-HMAC-SHA256%26X-Amz-Credential%3DAKIA3W5H4K55MRVYNJ7U%252F20251216%252Fus-east-1%252Fs3%252Faws4_request%26X-Amz-Date%3D20251216T074215Z%26X-Amz-Expires%3D60%26X-Amz-SignedHeaders%3Dhost%26X-Amz-Signature%3D04392934b653d8109b81b2cee12b1c9c62a9bf2f9ab909a3f88cc2fca8a37f45)
Gratuidade encerrada
16:30
16:30
Relatos de Experiência Brasileiros sobre o uso das novas tecnologias
Dr. Leonardo Araujo Pinto
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Gratuidade encerrada
16:45
16:45
Horizonte Tecnológico: Quais as novidades para o tratamento da fibrose cística?
Cristiano Machado Silveira
AcessarPatrocinadores
Master
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